Month: April 2022

I love when Sam pours red hot palm oil on my plans.  Its his way of letting me know that regardless of my conservative ideas and my goals,he will always set his own standard

I think i have shared here when Samuel finished school about our gradutions age goal…it was when he turns 21.  There are many reasons behind this goal which includes the uncertainty about the courses Samuel can succesfully complete each semester and the level of the ourses.

So i met with the School teachers/resources on Wednesday to discuss options for Samuel (PTA Meeting).  The goal is to see how he is doing in his courses and identify those he may need to take over next year.  Well, it was great to not only hear from everyone about the amazing human Samuel is but they shared about his academic achievements.

Samuel is at minimum B in his courses and is on the path to geaduate in 2 years. How did this info pour hot red oil on my white dress you may ask? My education funds is aimed at Samuel graduating school in 2026/2027, i know have to go rake money somewhere because my Sammie is on the path to graduate in 2024.

This young man continue to surprise me. I really cant wait to see what the future holds. I cant wait for him to show his ability to the world and force everyone to see the wonderful ability that lay within him. I see it daily

I know it has been a long while. Taking time out to fulfil a long time goal of mine was great but it took so much time away from some of my commitments.

Now…Sensory. Being either Hyper or Hypo sensitive to noise, cold, heat, fabric…the list goes on .. is not foreign to autism. I remember for many years when Samuel would only wear a certain type of fabric or rip his clothes because of senaory issues.

One of our recent callenges is his hypo sensitivity to cold. Samuel has always been able to endure very cold temperature however it has gotten worst since the lovkdown. Samuel sleeps in very cold room…as a matter of fact, you will need a jacket to go in his room….he calls it The Artic.

The side effect of this is that even thou he probably doesn’t feel the cold like we do, his body does feel it internally. This has translated to continuous running nose….cold etc. Why do i let him sleep in the cold? Because i am not Jesus :)…i cannot watch him through the night:) I use to go to his room and turn it off and if you give it 2 minutes, you will hear movement in his room.

As we take time today, April 2nd, to discuss autism, i want you to be aware of the person that covers their ears to block out noise, the person that flaps their hands, that person that continously run their hands under water or play with sand…i want you to accept the uniqueness in all of us. When interracting with a person on the spectrum or their parent, i encorge you to show compassion in place of judgement, I encourage you to be quiet even when you are eager to speak, i encourage you to manage your expression and i hope that you will ask “Do you need help”.

I don’t see the negativity in Autism, what i see more is intollerance in some people. I hope we all educate ourself and children about autism as we move through the month of April.